month one. is done.

saw the clinical researcher yesterday.

showed him the photo of the massive reaction my bod had on Tuesday night.  still there.  but getting better with some numbness on top.

five-inch hot red raised welt.  with tiny raised bumps sprinkled across my skin like tiny stars.

ouch.  that one hurt!

what am I putting in my body?

my thoughts spiraled as I eyed the dangling welts from the last two weeks.

what am I doing to my body??

lots to consider.  pros/cons.  ifs.  buts.  whats??

bit too much for this girl.  but at the moment, I’m appreciating the fewer shots.  giving the dailies up for the day after joint pain.  and massive red welts.  huh.

we’ll see what and how I feel the next time I put on a bikini.

and watch my brain flash by in black ‘n white images after my next MRI.

and work my body out.

MS is kinda sucky.

but certainly the awakening I am awaiting.

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a boy called Gus.

I type this while our little girl is snuggled up next to me.

her head resting on my thigh.

one long ear draped over my left wrist.

peaceful sighs leaving her body.  breathing in and out.

she purrs like our Chloe.  I have never heard a dog purr.  but our girl does.

I wonder if that’s something Monty would have taught Gus.

a boy we would have called Gus.  the dog we will never know.

it still makes be sad that we will never know him or see him grow.  what would have been our Gus stories?

yet we made the right decision not to take him.

we got caught up in the puppy love.  he was so soft and squishy.  who wouldn’t??

we just wanted more love in our house after the last few years we have had…too many losses.

but then wise reality started to wriggle her way in.  think of the effort, she whispered.  and time.  the messes.  the frustrations.  his size.  and your poor girl was scared, remember?? what would happen if they were home alone together, and he snagged Red Bear??  

er. yes.  our girl was scared.  and we ignored her.

so we began discussing what could happen if this or that should occur? guilt and shame followed forgetting that we have all the love we want (and need) from our girl.

one is enough.  enough.

xo

week one. done.

week one on Copaxone 40mg/3x/week is DONE.

and all I can say is, I’m completely…no, utterly sold on the new freedom 3x a week is bringing.  and I just feel better all the way around.

so much freedom, the hub and I are considering doggy #2.  (we’re crazy, I know.  but no babies, so fur babies are a good replacement.)  this guy is older – ten – and needs a home.  we’ll see what doggy #1 has to say about this.  she’s got the floor on this one!

back to the clinical trial…

other than my regular nasty red welts that take 48+ hours to go away.  nothing is different.  well, the only thing that’s new is some joint pain day following injection.  related?  don’t know, but keeping tracking track of everything in my Teva diary.

that’s the latest scoop from my neck of the MS world.  pretty darn grateful.

what’s new with you?  do tell.  😉

xo

trial run.

so, it’s been confirmed:  I’m officially participating in a Teva clinical trial to play with the new three times a week therapy that is moving toward FDA approval in approximately one year.  the new 40mg syringes are being compared to the existing once a day 20mg therapy…so I could have been selected for what I’m already on…figured it was worth a try!

and finally yesterday, I found out I was randomized for the 40mg/3x/week!  super excited!  four days a week I do not have to experience the pain of an injection – yahoo!!

cool factor>>while I really wanted to give the 40mg a try, I knew I could not control the outcome….so I gave the decision up to the Universe…un-gripping my attachment to the outcome…and look what happened!  note to self:  do that often.

keep y’all posted on how it goes.  I kinda butchered my first shot yesterday @ the doc’s office, but the clinical researcher said it looked like I got most of it in…as I watched with terror as about half of the liquid spilled out on the table.  I blame the new AutoJect 2 pen I received.  sure.  no user error involved.  nope.  😉

I am setting the intention that this journey to be less exciting, less painful, and more freeing than my last adventures in learning how to self-administer injections.  🙂

xo

ps.  I have been posting a daily What Went Well (WWW) on FB these days a la Positive Psychology style.  wheeee! – it’s been so fun…and certainly helps keep my positive mojo flowing.  been thinking I should start a separate blog stream for my daily WWWs.  huh.  I’m copying them all into my daily Morning Pages.  maybe something I will focus on for the writing class I just began on Tuesday…(I always gotta have something to relieve the work stress.)

what provides you relief from the daily life, work, family, relationship stressors out in the world?  share below!  xo